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Wednesday, October 22, 2008

at 8:38 AM ·

ComputerWorld.com Article of Interest:

10 Free Downloads For Your Network

Whether you have a small home or business network, or a large enterprise network, these 10 free downloads can help with security, speed and management. They're useful, easy to learn ... and best of all, free!

http://www.computerworld.com/action/article.do?command=viewArticleBasic&articleId=9058842

Article Copyright 2008 Computerworld Inc.
http://computerworld.com

http://www.computerworld.com/action/article.do?command=viewArticleBasic&articleId=9058842

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AWARENESS CAMPAIGN

May 10th is Cornelia de Lange Syndrome Awareness Day Click Here for publications from CdLS Foundation : Blog to Raise Awareness Campaign : Post this CAMPAIGN Message to Your Site Get Involved! (details below) The Blog to Raise Awareness of CdLS Campaign originated at: http://blog.urlage.com/2008/02/blog-to-raise-awareness-of-cdls.html

What is Cornelia de Lange Syndrome?

Cornelia de Lange Syndrome also known as CdLS, is a little known and rare genetic disorder resulting in severe developmental abnormalities. CdLS Quick Facts

CdLS is a genetic syndrome present from birth. There is no cure.
CdLS occurs in approximately 1 in 10,000 live births. It affects males and females equally, and is seen in all races.
The severity of CdLS ranges from mild to severe, but all individuals with CdLS share similar characteristics, such as small stature, hands, feet, and head; joined eyebrows; long eyelashes; upturned nose; and thin, down-turned lips. Physical and cognitive development is delayed. Self-injurious behavior is common, and between 60-70% display some degree of autism spectrum disorder. Speech and language are delayed or absent. Limb differences and/or missing limbs occur in 25% of cases. Common medical problems include gastroesophageal reflux disease, bowel abnormalities, heart defects, seizures, and cleft palate.
Since 2004, changes in three different genes have been identified as causing CdLS. These genes are NIPBL on chromosome 5; SMC1A on the X chromosome; and SMC3 on chromosome 10. Changes in the latter two genes seem to correlate with a milder form of the syndrome.
In 99% of cases, the gene change that causes CdLS is sporadic, not inherited, which means the change occurs randomly during conception.
Researchers estimate there are 20,000 individuals in the U.S. who have CdLS but live without diagnosis and/or support services.

More Information can be found at the web sites below: National Organization For Rare Disorders Genetic Home Reference Special Child: Disorder Zone Archives Ask the Geneticist Google Search> Cornelia de Lange Syndrome CdLS USA Foundation Blog CdLS World Watch the "Find One Child" Video or order the DVD [http://www.cdlsusa.org/video/index.shtml] Watch the CdLS USA Conference Highlight Video [http://www.cdlsusa.org/movie/CDLS_CHICAGO_256k.mov] Research Book Cornelia De Lange Syndrome: A Medical Dictionary, Bibliography, And Annotated Research Guide To Internet References (Paperback) Give to Support the CdLS Foundation http://www.cdlsusa.org/give/index.shtml Shop at iGive to support CdLS Foundation!

Click to join cdls-kids

Why did I post this? I am the grandparent of a CdLS child hoping to raise awareness of this rare disorder and in turn, bring much needed support to the affected families.

The Blog to Raise Awareness of CdLS Campaign is dedicated to my granddaughter: AVERY VICTORIA Born May 9, 2007

Get Involved! (open to all)

Submit a comment to this post (guidelines) with a link back to your 'CdLS Awareness' post. Once submitted, I will feature your blog, site or profile on URLAGE Blog (terms) with a one paragraph post (option: your text). You may use this posts' content (campaign code), create your own (encouraged) or visit the CdLS Foundation for publications. That's it, start posting!

Get a Banner for Your Blog or Site:

-Choose from over 35 pre-made banners with the html code for hot linking. -No limit, use as many banners as you need - put one on all of your blogs, sites, forums, profiles, etc. -All banners and the html code listed as a spreadsheet: http://spreadsheets.google.com/pub?key=prU6bFXfPZZqBA6bAUzofGg -Preview all banners and get the html code (Direct link, IM or Email and [IMG]/Forum): http://s47.photobucket.com/albums/f151/z007/CdLSbanners/

Banner Slideshow: (click any banner for the html code)

SHARE YOUR STORY:

If you have CdLS or you are a family member or caretaker, and would like to be included in this campaigns' post, I will post your story (option: your text) and a link to your blog, site, profile, or other (ie: photo, artwork, ...). Contact me!

Disclaimer: I (and URLAGE Blog) am not affiliated with or employed by CdLS Foundation or their affiliates, nor am I a relative, friend or friend-of-a-friend affiliated with or employed by the CdLS Foundation. This URLAGE Blog post does not suggest that the CdLS Foundation is affiliated with, approves of or sanctions this site, nor does it imply any association with the CdLS Foundations' owner, registered name, trademark name or holder (if applicable).All information contained here is for personal interest or information to the blog reader. I (and URLAGE Blog) have not and will not financially gain from this post.

HELP Raise Awareness of CdLS <> Join iGive!

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